Maryam is a 5 month old baby girl suffering from Spinal Muscular Atrophy (SMA), causing her helpless little muscles to gradually weaken.
Maryam lost her brother Abdullah to the same condition a few years ago. Currently there is only one treatment known as Spinraza for which her brother Abdullah was amongst the first of only a handful of children who were offered Spinraza for its initial clinical trials. Whilst it was too late for Abdullah, there is still time for Maryam who urgently needs treatment to save her life.
However, she is being denied the treatment under the NHS which was previously available and is currently available in Scotland. The National Institute of Health & Care Excellence (NICE) have not approved the drug and are withholding significant treatment that could improve Maryam's quality of life. This drug can help not just Maryam but many other children suffering from the rare disease in the UK.
"...IF ANYONE SAVED A LIFE, IT WOULD BE AS IF HE SAVED THE LIFE OF ALL MANKIND..."
THE QUR'AAN 5:32
You can help us save Maryam by signing the petition to ensure that Biogen, National Institute for Health & Care Excellence (NICE) and the NHS come together to provide her and others with the treatment.
To learn more about Spinal Muscular Atrophy (SMA), please click HERE